Daily Times

ISLAMABAD: Two ‘Solar Kids’ have been shifted to Pakistan Institute of Medical Sciences (PIMS) as both real brothers get activated with the sunrise but almost fainted out with the sunset.

A team of 32 medical experts, constituted to check the mysterious disease of two brothers hailing from Namowandi, Khuzdar Baluchistan, is busy to trace the reasons of extraordinary syndrome but they could not succeeded in diagnosing the real cause of this mysterious disease yet.

Three children from a family were brought to PIMS from far flung Namowandi, Khuzdar area of Baluchistan. They are the sons of Muhammad Hashim namely Shoaib Ahmed 13 years and Abdul Rashid 9 and one year old Muhammad Ilyas are suffering from extremely weird type of ailment.

Most surprisingly their one year old brother Ilyas is also suffering from this odd sickness but their two sisters and one brother are absolutely normal.

They all three become active with the sunrise and they behave like common children in sun light, but on sunset they turn out to be faded. Their eyes begin to close as they loss their all the senses after the sunset and have not any feeling of hunger or thirst. Their brain stops working after the sundown and even they have not any nous to go to bathrooms to attend the call of nature. It seems that somebody has put their battery off with the sunset.

The Vice Chancellor of Shaheed Zulfiaqr Ali Bhutto Medical University, Dr Javed Akram told Daily Times that it is the most rare disease globally, which could not be given any name so far. “We came to know about the children through media and PIMS presented its services”, he added.

He said first they were shifted to Lahore where under the supervision of team comprising 19 medical experts they were gone through more than 200 medical tests, but the doctors could not find anything regarding this anomalous illness . Then they were shifted to PIMS along with their panel of doctors. Here a team of 13 senior doctors was constituted for the treatment of the children and in this way 32 specialist medical experts are trying to diagnose this astonishing disease.

Their parents are real cousins and there is possibility of any genetic problem, he said, adding that these children are kept in complete dark at the Prime Minister’s suit at VVIP Ward of the hospital, where former President Asif Zardari was kept in the same room when he was under treatment at PIMS. But these children have not any problem with the darkness but their disease is about the sunlight. At sunset they almost turn into dead bodies. The research is going on them.

Dr Javed said that during one or two days they will be undergone a medical test namely Tetnalone by which the doctors would detect that a chemical with the name of Anticoli in their bodies because sometimes the presence of the chemical in the body could join the muscles of the patient that produces such symptoms as they two children are showing.

Dr Javed said that the condition of these children have been reviewed internationally and different doctors from England are in touch with PIMS hospital that after completion of research on them, to share its consequences with them so the nature of the disease could be ascertain.

Professor Javed Akram said that all three children were born in normal delivery. Their brother one year old Ilyas who is bearing same kind of disease but now he is in the village with his mother. A team of experts is looking after the toddler who is also a ‘Solar Kid’ in his village. They also scan water, air and dust of the village to know if there is any microbe is found.

The VC medical university said if they would succeed in providing treatment to the children, then their brother would also be shifted to PIMS.